Our Facebook page is where you’ll find the latest news about both the charity and research into ICP.
For support on Facebook, please visit one of the groups described below.
Online meetings via Zoom
We hold regular online meetings for small groups via Zoom. Join our main Facebook group or email firstname.lastname@example.org to receive notifications about these meetings.
ICP Support runs various support forums on Facebook. Posts are monitored by a team of volunteer moderators, but any member of an individual group can post and comment.
We strongly recommend that you read the information at About ICP before asking a question, as there is a very good chance that you will find the answer to your question there.
In order to join some of our groups, you may have to answer one or more questions to ensure that you are joining a group that is appropriate for you. Please ensure that you answer the questions! Note: Unfortunately, because of a Facebook error some people do not see the questions. If this happens to you, send an email to email@example.com so that we can bypass the problem.
ICP Support’s main Facebook support group is a worldwide closed group, which means that only members of the group can see your posts.
You’re welcome to join at any time.
Precious Memories is a closed group for those of you who have been affected by the death of an ICP baby. Posts in this group can only be seen by members of the group.
ICP Support – Birth & Beyond Group is a closed group for for mums who have had ICP and need privacy to be able to chat about their experience of having had the condition and how it has left them feeling. It is also for women who have had ICP (even if it was many years ago) but continue to have liver problems or who want advice about contraception, HRT, gallstones and more. Posts in this group can only be seen by members of the group.
This group is for healthcare professionals who want to learn more about ICP. We do not give medical advice but we can provide you with the most up-to-date information there is regarding diagnosis, treatment and management of ICP, as some of us work in research into the condition.
We have several regional groups, currently run as pilot projects.
These groups are not intended to replace the main group, which you should continue to use to ask questions about ICP or to get support. The regional groups are more like informal community groups where you can meet others who may live in your area for a ‘virtual’ cake, coffee and chat. We will also use these groups to update you about any ICP-related events that may be taking place in your area or to advertise fundraising events more local to you.
The groups are:
- London & South-East: https://www.facebook.com/groups/ICPSupportLondonandSouthEast/
- Scotland: https://www.facebook.com/groups/ICPSupportScotland/
- Midlands: https://www.facebook.com/groups/ICPSupportMidlands/
- North: https://www.facebook.com/groups/ICPSupportNorth/
- South and South-West: https://www.facebook.com/groups/ICPSupportSouthandSouthWest/
The views expressed on our Facebook groups are not necessarily endorsed by ICP Support, but we aim to be non-judgmental, respecting that everyone’s experience will be unique to them. If you are posting a reply to someone it may help you to think about the impact your words may have on them before posting.
We reserve the right to remove or not post a message if we believe that the content isn’t appropriate for a public forum. This is not an easy decision to make as we believe that everyone has the right to be heard. However, we also have to consider what is in the best interests of our members and very occasionally a message will come through that may be particularly upsetting for other people to read. We will always contact the person who is posting to offer them support.
We reserve the right to remove users from any of our groups if their presence in the group is inappropriate.
If you have any concerns about anything that has been written you can email Jenny Chambers directly (firstname.lastname@example.org) and let her know so that we can support you.
If you would like to talk to someone about ICP you can call our Support and Information Line. Our befrienders are not counsellors, nor can they make a diagnosis or give you advice about what to do, but they have all had the condition and know what it’s like to experience that awful itching in pregnancy, so they can listen and empathise and share what helped them to get through an ICP pregnancy.
The Support and Information Line is open to everyone affected by ICP. So feel free to contact us if you have any questions about the condition, whether you are the partner of someone with ICP, a family member, a friend or even a midwife.
Do remember that all the information we give you is based on research.
If you’d like to help ensure that we can keep Support and Information Line open, please consider making a donation.
If you need to contact the charity about an administrative matter, please call our office: 0121 323 4316. We do not provide support on this number.
Within the UK, call 07939 871929.
We will endeavour to answer calls quickly, but sometimes you will get through to voicemail. Please don’t let that put you off – the phone is checked regularly, so either leave a message or text and we will get back to you.
For support by email, contact email@example.com. As with telephone support, you may not get an immediate response, depending on availability.